A person with Parkinson’s can face challenges impacting on many aspects of their life. It’s important to acknowledge that while there may be challenges daily, symptoms can vary from day to day. No two days will be the same, and the level of support required will fluctuate. There may be periods of time when they can function independently and then other times when they will require higher levels of support. The fluctuation in ability is a natural part of the disease progression, however it can be frustrating and confusing for a care giver or appear that the person is being unnecessarily demanding or lazy.

Taking care of someone else’s needs and emotional wellbeing can be intense. It is important you take time for yourself to ensure you preserve your own emotional and physical strength.

• Plan opportunities when you can engage in your own chosen relaxation or social activities. Take time out from care responsibility at regular intervals.
• Establish a support network of people you and your loved one can turn to for a chat and support. Share how you’re feeling with those closest to you so they can provide additional support
• Continue social activities with friends and family and seek assistance form your support network when required.
• Consider joining a support group so you and your loved one can access support from others in similar situations. Parkinson’s UK coordinates several support services including groups. Our support services | Parkinson’s UK.
• You may be entitled to Carer’s Allowance if you’re caring for someone with Parkinson’s disease.
• If you need help providing care to your loved one then ask for an assessment from the adult social services department run by your local council. This can take time to organise, so don’t delay if things are starting to get difficult.
• Talk to your own GP if you are struggling emotionally. Being a care giver for a loved one, whilst rewarding, can be difficult. Different support will be available for people like you depending where you live. Please see the Local information section about what support is available locally. Please also look at the Clinical Psychology section of My Parkinson’s and any other relevant information. My Parkinson’s has been designed for the families of people with Parkinson’s as well.

Ways that families can support people with Parkinson’s include:

• Educate yourself about Parkinson’s and how it progresses so that you understand what changes to expect in your loved one’s behaviour, ability or symptoms and how you can best support them when changes occur.
• Allow your loved one to participate fully in activities to the best of their ability. Avoid rushing and needing to take over by allocating sufficient time to complete the task.
• Encourage open conversations about your loved one’s day to day choices and future wishes. While it can be uncomfortable to discuss these topics, you need to be aware of your loved one’s wishes. Further information can be found in Planning for the Future.
• Talk openly about feelings, emotions and mood. Depression, apathy and low mood are often parts of Parkinson’s. It is important you and your loved one recognise the signs of depression so you can access support. Caring for a loved one can be challenging so it is equally important you as a care giver follow this same advice.
• Discuss family and individual goals. Plan activities for the near future that can been looked forward too. Future plans and achievable goals can help to motivate and maintain emotional wellbeing.

benefits, support, help